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Meet some of our superheroes battling KIF1A Associated Neurological Disorder. They’re the bravest people we know.

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Summer’s Superhero Story

May 27, 2024 | Gold Coast, QLD, Australia

We love her just as she is and could never imagine not having her with us. She completes our family in a quirky kind of way. We won’t ever stop fighting to get her well. I believe in miracles, and she is one

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  • November 19, 2024
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  • Hunter Valley , NSW

Sarah’s Superhero Story

Sarah has an infectious laugh and a smile that will light up any room. She loves her younger brother Josh…Read More
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  • May 28, 2024
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  • Victoria, Australia

Azalea’s Superhero Story

Azalea’s journey, from her birth in 2017 to the diagnosis of KIF1A in 2021, exemplifies resilience in the face of…Read More
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  • May 28, 2024
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  • Bendigo, Victoria, Australia

Edward’s Superhero Story

When Edward was just a baby he had attachment issues to feeding and I noticed his eyes would roll back,…Read More
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  • July 29, 2024
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  • Brisbane, QLD, Australia

Zanders’s Superhero Story

Zander is the happiest, cheekiest little kid on the planet. Whilst he can’t speak, he understands everything we say, and…Read More
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  • May 28, 2024
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  • Australia

Lizzy`s Superhero Story

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  • May 27, 2024
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  • Brisbane, QLD, Australia

Veran’s Superhero Story

Veran is the youngest of three brothers. He enjoys playing with cars, using obstacle courses and LOVES to runRead More
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  • December 3, 2024
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  • Australia

Gemma and Shaye`s Superhero Story

Twins Gemma & Shaye’s StoryRead More