Veran’s Superhero Story

Veran is the youngest of three brothers. He enjoys playing with cars, using obstacle courses and LOVES to run. Unfortunately, he needs assistance to do all of this and will eventually not be able to run due to the progressive nature of his genetic condition. Veran is for the most part, a happy and friendly boy who loves to interact socially. He does suffer from pain related to his condition, and we hope through research, we can reduce his pain, progressive loss of movement and eye sight, and generally increase the quality of his life, and quality of life for those who care for him.
Megan (Verans mum)